I'm heart-broken his cancer has returned - firefighter's run to Rome challenge to save life of Benny, 4

After two years of treatment for high-risk neuroblastoma, the family of Benny thought their child was free from the disease, only for it to return in September this year (2025).

Gary Tough, a Station Manager at County Durham and Darlington Fire and Rescue Service (CDDFRS), became aware of Benny’s situation through his brother, who is the little boy’s uncle.

Gary will soon embark on a 1,393 mile endurance challenge, the equivalent of travelling from Benny’s home in High Shincliffe to Rome. The significance of the journey is the Italian capital now offers the best hope for Benny to get the potentially life-saving treatment he needs.

Benny is currently ineligible for clinical trials in the UK.

Speaking about Benny’s situation earlier this month his aunt, Laura, said: “Because it’s relapsed neuroblastoma it’s not just the same kind of treatment.

“This is where the Rome treatment has come from. This is where the most promising curable treatment is.”

Ahead of his mammoth fundraising challenge, dad of two Gary said: “Benny has spent a lot of time growing up with my daughter.

“He is a happy and caring little boy and it is heart-breaking that his cancer has returned.

“In solidarity with Benny and his family, I’m setting myself a challenge to cover 1,393 miles by cycling, running or walking.

“The plan is to complete the final miles on March 29, 2026, by running a 50km ultra marathon around Durham City.

“To hit that target, I need to average 12.2 miles every day for the next 114 days.

“If you’re able to donate, it will mean the world to me and to Benny’s family.

“Every pound helps bring them closer to the treatment Benny needs.”

The family need to raise £393,000 for the treatment.

You can donate to Benny’s cause via Gary’s JustGiving page.